{"id":7170,"date":"2022-04-04T17:11:22","date_gmt":"2022-04-04T15:11:22","guid":{"rendered":"https:\/\/www.nexmif.it\/chi-siamo\/"},"modified":"2023-12-01T11:37:55","modified_gmt":"2023-12-01T10:37:55","slug":"about-us","status":"publish","type":"page","link":"https:\/\/www.nexmif.it\/en\/about-us\/","title":{"rendered":"About us"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"7170\" class=\"elementor elementor-7170 elementor-4852\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-77be elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"77be\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c9fa9a1 column-style-top column-top\" data-id=\"c9fa9a1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bc9e88f elementor-widget elementor-widget-image\" data-id=\"bc9e88f\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.20.0 - 11-03-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"892\" src=\"https:\/\/www.nexmif.it\/wp-content\/uploads\/2023\/12\/chi_siamo_nexmif.jpg\" class=\"attachment-full size-full wp-image-9058\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-0b41627 column-style-top column-top\" data-id=\"0b41627\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-adca471 elementor-widget elementor-widget-gva-heading-block\" data-id=\"adca471\" data-element_type=\"widget\" data-widget_type=\"gva-heading-block.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<div class=\"gva-element-gva-heading-block gva-element\">   <div class=\"align-left style-1 widget gsc-heading\">\r\n      <div class=\"content-inner\">\r\n                     <div class=\"heading-icon\"><img decoding=\"async\" src=\"https:\/\/www.nexmif.it\/wp-content\/plugins\/gavias-oxpitan-themer\/elementor\/assets\/images\/icon-heading.png\" alt=\"Unione Italiana Nexmif\"\/><\/div>\r\n           \r\n                     <h2 class=\"title\">\r\n               <span>Unione Italiana Nexmif<\/span>\r\n            <\/h2>\r\n                              <div class=\"sub-title\"><span>For our children, for everyone<\/span><\/div>\r\n                  \r\n               <\/div>\r\n   <\/div>\r\n   <div class=\"clearfix\"><\/div>\r\n<\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bd3fa02 elementor-widget elementor-widget-text-editor\" data-id=\"bd3fa02\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.20.0 - 11-03-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p><strong>Unione Italiana Nexmif is a voluntary organization<\/strong> wanted by parents of children diagnosed with mutation in the gene Nexmif, <strong>formerly known as Kiaa2022<\/strong>, cause of intellectual disability, Severe drug-resistant epilepsy and autism spectrum behaviors.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cfdb47e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cfdb47e\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8d05570 column-style-top column-top\" data-id=\"8d05570\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4c054c7 elementor-widget elementor-widget-image\" data-id=\"4c054c7\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1024\" height=\"678\" src=\"https:\/\/www.nexmif.it\/wp-content\/uploads\/2022\/05\/nexmif_mission.jpg\" class=\"attachment-full size-full wp-image-7948\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4c28888 elementor-widget elementor-widget-gva-heading-block\" data-id=\"4c28888\" data-element_type=\"widget\" data-widget_type=\"gva-heading-block.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<div class=\"gva-element-gva-heading-block gva-element\">   <div class=\"align-left style-1 widget gsc-heading\">\r\n      <div class=\"content-inner\">\r\n                     <div class=\"heading-icon\"><img decoding=\"async\" src=\"https:\/\/www.nexmif.it\/wp-content\/plugins\/gavias-oxpitan-themer\/elementor\/assets\/images\/icon-heading.png\" alt=\"Mission\"\/><\/div>\r\n           \r\n                     <h2 class=\"title\">\r\n               <span>Mission<\/span>\r\n            <\/h2>\r\n                              <div class=\"sub-title\"><span>Our scope<\/span><\/div>\r\n                  \r\n               <\/div>\r\n   <\/div>\r\n   <div class=\"clearfix\"><\/div>\r\n<\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-06ad571 elementor-widget elementor-widget-text-editor\" data-id=\"06ad571\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Our <strong>Mission<\/strong> is to promote <strong>awareness<\/strong> of Nexmif encephalopathy <strong>signs and symptoms<\/strong>,<strong> raising funds for scientific research<\/strong>.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c12d946 column-style-top column-top\" data-id=\"c12d946\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-dad3cea elementor-widget elementor-widget-image\" data-id=\"dad3cea\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/www.nexmif.it\/wp-content\/uploads\/2022\/05\/nexmif_vision.jpg\" class=\"attachment-full size-full wp-image-7950\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-514fbec elementor-widget elementor-widget-gva-heading-block\" data-id=\"514fbec\" data-element_type=\"widget\" data-widget_type=\"gva-heading-block.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<div class=\"gva-element-gva-heading-block gva-element\">   <div class=\"align-left style-1 widget gsc-heading\">\r\n      <div class=\"content-inner\">\r\n                     <div class=\"heading-icon\"><img decoding=\"async\" src=\"https:\/\/www.nexmif.it\/wp-content\/plugins\/gavias-oxpitan-themer\/elementor\/assets\/images\/icon-heading.png\" alt=\"Vision\"\/><\/div>\r\n           \r\n                     <h2 class=\"title\">\r\n               <span>Vision<\/span>\r\n            <\/h2>\r\n                              <div class=\"sub-title\"><span>Our dream<\/span><\/div>\r\n                  \r\n               <\/div>\r\n   <\/div>\r\n   <div class=\"clearfix\"><\/div>\r\n<\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e128f56 elementor-widget elementor-widget-text-editor\" data-id=\"e128f56\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Our <strong>Vision<\/strong> is that all clinical aspects related to the Nexmif mutation <strong>can be cured<\/strong>.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-41f349b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"41f349b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-5c5a7b7 column-style-top column-top\" data-id=\"5c5a7b7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ccd9ed8 elementor-widget elementor-widget-text-editor\" data-id=\"ccd9ed8\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Sharing experiences is crucial, both internally and externally to this organization, for reasons of <strong>emotional and functional solidarity<\/strong>.<\/p><p>We are sure that by sharing our stories, we will boost <strong>new diagnoses<\/strong>. And help other families feel less alone.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-09c1ba8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"09c1ba8\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1884fb9 column-style-top column-top\" data-id=\"1884fb9\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-313f5b0 elementor-position-left elementor-view-default elementor-mobile-position-top elementor-vertical-align-top elementor-widget elementor-widget-icon-box\" data-id=\"313f5b0\" data-element_type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<link rel=\"stylesheet\" href=\"https:\/\/www.nexmif.it\/wp-content\/plugins\/elementor\/assets\/css\/widget-icon-box.min.css\">\t\t<div class=\"elementor-icon-box-wrapper\">\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<a href=\"\/wp-content\/uploads\/2023\/11\/Statuto_unione_italiana_nexmif.pdf\" class=\"elementor-icon elementor-animation-\" tabindex=\"-1\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-file-pdf\"><\/i>\t\t\t\t<\/a>\n\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t<a href=\"\/wp-content\/uploads\/2023\/11\/Statuto_unione_italiana_nexmif.pdf\" >\n\t\t\t\t\t\tdownload our  statute <i class=\"fa fa-download\"><\/i>\t\t\t\t\t<\/a>\n\t\t\t\t<\/h3>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-d9ed2a6 column-style-top column-top\" data-id=\"d9ed2a6\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a00e302 column-style-top column-top\" data-id=\"a00e302\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c2ac2fa elementor-widget elementor-widget-image\" data-id=\"c2ac2fa\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"707\" src=\"https:\/\/www.nexmif.it\/wp-content\/uploads\/2022\/05\/nexmif_condivisione_esperienze.jpg\" class=\"attachment-full size-full wp-image-7952\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Unione Italiana Nexmif For our children, for everyone Unione Italiana Nexmif is a voluntary organization wanted by parents of children diagnosed with mutation in the gene Nexmif, formerly known as Kiaa2022, cause of intellectual disability, Severe drug-resistant epilepsy and autism spectrum behaviors. Mission Our scope Our Mission is to promote awareness of Nexmif encephalopathy signs [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_mc_calendar":[],"footnotes":""},"class_list":["post-7170","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Voluntary organization - Unione Italiana Nexmif<\/title>\n<meta name=\"description\" content=\"Sharing experiences is an important tool to allows us to promote knowledge and raise funds to devolve to research.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.nexmif.it\/en\/about-us\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Voluntary organization - 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