{"id":7230,"date":"2022-05-03T17:04:22","date_gmt":"2022-05-03T15:04:22","guid":{"rendered":"https:\/\/www.nexmif.it\/storie\/anna\/"},"modified":"2023-11-30T10:02:07","modified_gmt":"2023-11-30T09:02:07","slug":"anna","status":"publish","type":"page","link":"https:\/\/www.nexmif.it\/en\/stories\/anna\/","title":{"rendered":"Anna&#8217;s story"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"7230\" class=\"elementor elementor-7230 elementor-5951\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-26ee17d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"26ee17d\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-84a6f48 column-style-top column-top\" data-id=\"84a6f48\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-adca471 elementor-widget elementor-widget-gva-heading-block\" data-id=\"adca471\" data-element_type=\"widget\" data-widget_type=\"gva-heading-block.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<div class=\"gva-element-gva-heading-block gva-element\">   <div class=\"align-left style-1 widget gsc-heading\">\r\n      <div class=\"content-inner\">\r\n                     <div class=\"heading-icon\"><img decoding=\"async\" src=\"https:\/\/www.nexmif.it\/wp-content\/plugins\/gavias-oxpitan-themer\/elementor\/assets\/images\/icon-heading.png\" alt=\"Anna and her story\"\/><\/div>\r\n           \r\n                     <h2 class=\"title\">\r\n               <span>Anna and her story<\/span>\r\n            <\/h2>\r\n                              <div class=\"sub-title\"><span>SHARE TO FIND<\/span><\/div>\r\n                  \r\n               <\/div>\r\n   <\/div>\r\n   <div class=\"clearfix\"><\/div>\r\n<\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-98f8f47 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"98f8f47\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-1f7fc97 column-style-top column-top\" data-id=\"1f7fc97\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-05163b8 elementor-widget elementor-widget-text-editor\" data-id=\"05163b8\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.20.0 - 11-03-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>Anna was born in 2016. Initial <strong>development was regular<\/strong>, with a little effort in latching the breast at first, but then everything settled with excellent growth, despite abundant and frequent regurgitation.<\/p><p><strong>Sleep<\/strong> was immediately hard, always <strong>short<\/strong> and <strong>light<\/strong>. She started walking alone at 18 months, showing a somewhat awkward gait. On the other hand, her parents are not graceful athletes either, and then every child has his own times.<\/p><p>Day by day she became more beautiful and smiling.<\/p><p>Very sensitive and susceptible to external events, disturbed by loud and sudden noises. There was no reason, however, to suspect any disease, her general health was good. At the nursery school they had reported a tendency to<strong> self-reported play<\/strong> and recommended to start relational psychomotor sessions that had been successfully undertaken.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-e4f5053 column-style-top column-top\" data-id=\"e4f5053\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2ec9a69 elementor-widget elementor-widget-image\" data-id=\"2ec9a69\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.20.0 - 11-03-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"450\" height=\"510\" src=\"https:\/\/www.nexmif.it\/wp-content\/uploads\/2022\/05\/Anna_foto.jpg\" class=\"attachment-large size-large wp-image-6871\" alt=\"\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-166be5f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"166be5f\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8cd1ec9 column-style-top column-top\" data-id=\"8cd1ec9\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2fbb50d elementor-widget elementor-widget-text-editor\" data-id=\"2fbb50d\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Then, around the age of 3, I noticed some very short, as well as frequent, winks of the eyebrows every day. The eyes that went up kind of breaking the contact, her tilting head, the violent myoclonus in her forearms and hands, shots behind the shoulders particularly strong when falling asleep, her head falls forward.<\/p><p>And so we entered the world of <strong>epilepsy<\/strong>, with some other discomfort in behavior and language development. We did not have a precise syndromic classification until the outcome of a larger genetic panel that highlighted the <strong>mutation in the Nexmif gene<\/strong>.<\/p><p>From the beginning it was all so much complicated, now we know why. We are not wrong, we are very special.<\/p><p>Knowing your enemy helps to fight him and, <strong>together, we will win.<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-412e07e6 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"412e07e6\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5aa11f3b column-style-top column-top\" data-id=\"5aa11f3b\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4c375649 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"4c375649\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-xl elementor-animation-grow\" href=\"\/en\/stories\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon elementor-align-icon-right\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-arrow-circle-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t<span class=\"elementor-button-text\">Back to the Stories section<\/span>\n\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Anna and her story SHARE TO FIND Anna was born in 2016. Initial development was regular, with a little effort in latching the breast at first, but then everything settled with excellent growth, despite abundant and frequent regurgitation. Sleep was immediately hard, always short and light. She started walking alone at 18 months, showing a [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":8031,"parent":7223,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_mc_calendar":[],"footnotes":""},"class_list":["post-7230","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Anna&#039;s story - Unione Italiana Nexmif<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.nexmif.it\/en\/stories\/anna\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Anna&#039;s story - Unione Italiana Nexmif\" \/>\n<meta property=\"og:description\" content=\"Anna and her story SHARE TO FIND Anna was born in 2016. 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